- We offer emotional support for everyone affected by Spina Bifida, including meetings at numerous local “Cluster” support groups throughout the state.
- Our newsletter “The Evergreen” details local SBAWS activities, provides news on medical, therapeutic, rehabilitative advances, recreational and legislative issues.
- Our website here and our toll free contact number: 1-888-289-3702
- Social events for children, teens and adults to gather, have fun and share their life experiences.
- New Parents Packets to help parents learn about Spina Bifida and to help manage their child’s health care needs.
- Educational scholarships may be awarded for educational purposes.
- Access to national’s “Insights” magazine and to other current information on Spina Bifida.
- A limited “Equipment Fund” to assist people with mobility devices, medical supplies and other necessary items not covered by insurance, as well as computer purchases.
The effects of Spina Bifida are different for every person. Up to 90% of children with the most severe form of Spina Bifida have hydrocephalus (excess fluid on the brain) and must have surgery to insert a “shunt” that reduces the pressure on the brain and helps drain the fluid. The shunt stays in place for the lifetime of the person. Other conditions can include full/partial paralysis, bladder and bowel control difficulties, learning disabilities such as attention deficit hyperactivity disorder (ADHD) and hand-eye coordination, depression, latex allergy and social and sexual issues.