Spina Bifida Association

of Washington State

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formerly, The Evergreen Spina Bifida Association

Together we make the difference.

... Upcoming Events ...

Development Committee Meeting Sunday

May 19, 2013    7 PM

1st Annual Open House

Monday May 27, 2013

Annual Picnic  6/8/13

Seattle Children’s Playgarden

Jamba Juice  - June 15th

Alderwood Manor

Summer 2013 at

Camp Korey

Next  Board Meeting

July 20, 2013

Walk & Roll 7/20/13

Bradley Lake Park

2013 Education Days

Salt Lake City 10/5/13

... Latest News ...

2013 Elizabeth Conference

2012 Annual Report

Java January

2012 Holiday Party Photos

2012  Summit & Picnic

Photos Password "SBAWS"

About Spina Bifida
Over 250,000 Americans are in the Spina Bifida Community.  An estimated 70,000 to 180,000 plus people in the United States are currently living with Spina Bifida, the most common permanently disabling birth defect.  Spina Bifida is a neural tube defect that happens in the first month of pregnancy, often before the women realizes she’s pregnant, when the spinal column doesn’t close completely.  There are 60 million women at risk of having a baby born with Spina Bifida.  Everyday, an average of 8 babies are born that are  affected by Spina Bifida or a similar birth defect of the brain and spine.  Each year, about 3,000 pregnancies involve these birth defects.
The Challenges of Spina Bifida
The effects of Spina Bifida are different for every person.  Up to 90 percent of children with the worst form of Spina Bifida have hydrocephalus (fluid on the brain) and must have surgery to insert a “shunt” that helps drain the fluid. The shunt stays in place for the lifetime of the person.  Other conditions include full or partial paralysis, bladder and bowel control difficulties, learning disabilities such as attention deficit hyperactivity disorder (ADHD) and hand-eye coordination, depression, latex allergy  and social and sexual issues.

…Links/ Resources…

Latex Manual

Kids Wish Network

Phase II Spina Bifida Research Project

Accessibility Guides

Direct Aid Reimbursement

Faces of Spina Bifida Magazine

SB Preparations Website

Self-Management Family & Individual

Make the Difference Today